Thursday, February 20, 2014

2-20-14 Update

We are sitting in the Infusion center, waiting for the last IV bag to empty out. Never fast enough. The last few days have been a little bit of a roller coaster, on Monday Jenny was unable to get out of bed or walk without assistance, it was pretty scary. The only change was that her dosage of anti-seizure medicine had been doubled on Saturday, so we hoped that there was a correlation between the increase in dosage and the decrease in function... We based the dose back to the original level and see seems to be doing better. 

Jenny and Her Dad at the Infusion Center
She continues to take naps everyday and not have a huge amount of energy, but it looks like we are not going to have to employ the walker that a bought quite yet....

We have been blessed with having Jenny's sister Maria here on Monday, and then her mom and dad here for a few days this week. It has been a real blessing!

Thank you all for your prayers and support, and if you haven't signed up for the Brain Tumor Fund Raising race in Charlotte on March 22nd do so by clicking here.

  

Sunday, February 9, 2014

The latest as of 2.9.14

Sorry for the delay in posts. Here is the latest - Jenny has started a daily pilled based chemo (Temador). This is the same medicine that she was on when she was getting radiation. She will be on this for the next 30 days, and then we'll do another MRI. Based on the pathology of the tumor, we have some indication that it might be effective.

We also had to meet with a Neurologist this week after Jenny suffered a mild seizure last week. She is now on some anti-seizure medicine and will go in for an EEG in a couple of weeks to see if there seems to be any addition abnormal brain wave activity. She has not had any other events like that since.

Overall, she is holding up well, the chemo has taken a little spring out of her step, but she is overall doing well. Jenny's sister, Paty, came and stated at the house for a few days earlier this week and was a real blessing with her laughter and culinary skills and allowed me to head up to Boston for a couple of days to meet with a client. At the worship meeting this morning a group of people prayed for Jenny, which was very encouraging to both of us.

We are enjoying the nice weather, taking some opportunities to sit out in the sun... Thank you for your continued prayers and support.

For any of you in the charlotte area, we are doing a 5K/10K fund raising race on 3/22. Go to this link - password is Jenny if you want to register for the race... the team name is Running for Jenny